I am sat in the lounge looking at a pile of presents, balloons and banners with seven written on them.
Seven.
Seven years have gone by and I cannot fathom how fast that has happened. Nor can I understand the deep love I feel for a little boy who has never uttered one word to me. Nor ever hugged or kissed me.
How can I feel such a profound connection? It goes to prove that in order to love someone deeply you don't need words it is profound. More significant than what can be shared or felt from one person to another.
I only have to look into his eyes and he only has to look into mine and smile and I know. I know that he has been my most significant catalyst for change and the most significant event in my life.
He is seven and he is moving forward, never backwards. Always progressing at his own pace and in his own time. In the past two years he has altered and is more engaged and aware than previous years. I am very proud of him, I am in awe of him and I am blessed to have him in my life.
Happy birthday Zack. My wonderful son. My boy. My love.
This isn't my blog, it's Zack's. Zack arrived here seven weeks early, he had no heartbeat and wasn't breathing. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. I hope that for whatever reason you find yourself reading this blog it can go some way to help those in the same situation and some way to remove the cloak that covers parenting a child with disabilities.
Friday, 12 February 2016
Wednesday, 20 January 2016
The dying chair
I should have mentioned Zack's got some new legs. Not actual legs, he's still got his own, they're getting quite chunky. By legs, I mean wheels.
We said goodbye to his old wheelchair. Old faithful. The one that is featured in so many photographs on this blog. It had been everywhere with us, days out, holidays, it even went abroad. Then one day, quite dramatically, it just gave up, in the middle of Debenhams, it quit.
As I casually strolled towards the lift with one eye on a four year old looking for toys, I heard shrieks from behind, followed by Dan shouting my name, which could only mean one thing, panic, or man drama.
It was panic, I turned to see the wheelchair collapsing in half with Zack still sat in it and Dan trying his best to keep it open. I should also mention that there was a store assistant stocking shelves who did nothing to help, thank you helpful Debenham's staff.
We got Zack out and folded the dying chair in half carrying it back to the car two heavy weights, one in need of new legs and one with no hope. (The wheelchair, had no hope, the wheelchair).
Fortunately at the time we had been testing out this little beauty over the summer.
http://www.chunc.com/products/chunc-recline-and-tilt.html
I can honestly say it is one of the best wheelchairs Zack has ever used. We have always had issues with Zack being able to maintain staying in a wheelchair for long periods but with the Chunc he is very, very comfortable. One day he even managed to sit in his chair for over three hours, unheard of in Zack world.
When we got our new chunk, there were a few teething problems with the set up, it needed a few adjustments and tweaks. And this is where the company really do come into a league of their own. Nothing was too much trouble. There was no long waiting period, everything was dealt with efficiently and quickly. You were looked after and you truly do feel like they want to get this right for you because it is too important to not get right. They want you to be completely happy with the Chunc.
After it been tweaked and adjusted, Zack was good to go, and we haven't looked back. Out of all of our equipment this is one of the most important pieces. And Zack's new legs are looking the business. Thank you Chunc.
We said goodbye to his old wheelchair. Old faithful. The one that is featured in so many photographs on this blog. It had been everywhere with us, days out, holidays, it even went abroad. Then one day, quite dramatically, it just gave up, in the middle of Debenhams, it quit.
As I casually strolled towards the lift with one eye on a four year old looking for toys, I heard shrieks from behind, followed by Dan shouting my name, which could only mean one thing, panic, or man drama.
It was panic, I turned to see the wheelchair collapsing in half with Zack still sat in it and Dan trying his best to keep it open. I should also mention that there was a store assistant stocking shelves who did nothing to help, thank you helpful Debenham's staff.
We got Zack out and folded the dying chair in half carrying it back to the car two heavy weights, one in need of new legs and one with no hope. (The wheelchair, had no hope, the wheelchair).
Fortunately at the time we had been testing out this little beauty over the summer.
http://www.chunc.com/products/chunc-recline-and-tilt.html
I can honestly say it is one of the best wheelchairs Zack has ever used. We have always had issues with Zack being able to maintain staying in a wheelchair for long periods but with the Chunc he is very, very comfortable. One day he even managed to sit in his chair for over three hours, unheard of in Zack world.
When we got our new chunk, there were a few teething problems with the set up, it needed a few adjustments and tweaks. And this is where the company really do come into a league of their own. Nothing was too much trouble. There was no long waiting period, everything was dealt with efficiently and quickly. You were looked after and you truly do feel like they want to get this right for you because it is too important to not get right. They want you to be completely happy with the Chunc.
After it been tweaked and adjusted, Zack was good to go, and we haven't looked back. Out of all of our equipment this is one of the most important pieces. And Zack's new legs are looking the business. Thank you Chunc.
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