Zack thought we hadn't been to hospital for a while so worked up a real treat of a virus over the past week.
An episode of difficulty in breathing due to a blocked nose, high temp and no sleep for almost two days had me whisking him off to the open access ward for some answers.
We weren't alone for too long a little friend we know well ended in the next bed. Hello if you're reading, hope you feel better. Thought it was slightly dramatic just to have a catch up but it was nice to chat to someone who understands what you're going through.
Two doctors, one x-ray, one urine test and one lot of ibuprofen later we were sent packing with some antibiotics and instructions to drown him in saline nose drops to soften the mucus. Turns out the X ray didn't show definite signs of a chest infection but little spots that may suggest something could turn nasty. Using the theory better to be safe than sorry we took the antibiotics in the hope this may clear up any nast hanging about.
Poor boy, he's just caught one thing after the other, probably our worst winter yet. I think it's all to do with him going to nursery and mixing with lots more children. I am hoping that the more he catches the stronger his immune system gets then again, I know there have been some really horrible bugs out there, I've had them twice and took a while to shift them.
Oh and to top this off Scarly bum has been poorly with her own virus giving her the trots and a lack of appetite. Although it didn't put her off eating half a Freddo bar and ice-cream.
Corner now turned, fingers crossed, seems like both of them are on the mend. I know Zack is feeling a little better as I have had some smiles here and there today and the Scazlet has been stuffing her face. Aaaah back to normal.
Now for the shock......Zack fell off the bed!
Dramatic Pause.
I know. He doesn't move much. How did that happen? I propped him up in a sitting position on our bed with a pillow either side of him to stop him leaning. Scarlett and I went in to her room, next minute I heard, bang, bang, ten second pause and then whoooooooh, whoaaaaah.
No, I thought, it can't be. Whisked up Scarlett went running in to our bedroom to find Zack in tears on the floor. Immediately scooped him up checked for bleeding, checked for bumps, checked for red marks. Nothing. Five minutes of cuddles later he was happy again.
So what happened? He was a foot away from the bed in a sitting position. He wasn't lying down ready to roll. I mean it's bad, but in a way, it's good. It means he can move somewhat. Now when I put him on the couch I have three massive cushions on the floor and give him firm instructions to stay.
I told his Dad what happened, all the while Zack was listening and kept smiling at the phrase "I don't know how he did it".
Little minx, what is he up too?
This isn't my blog, it's Zack's. Zack arrived here seven weeks early, he had no heartbeat and wasn't breathing. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. I hope that for whatever reason you find yourself reading this blog it can go some way to help those in the same situation and some way to remove the cloak that covers parenting a child with disabilities.
Showing posts with label movement exercise. Show all posts
Showing posts with label movement exercise. Show all posts
Monday, 19 March 2012
Sunday, 7 June 2009
As soon as I switched them on he put his head back and went to sleep
Zack had a good weekend. He got pushed around Bolton, all snug in his carry cot complete with waterproof protection and enjoyed a spot of people watching in M & S cafe. His dad and I on the other hand got soaked, battled through Saturday shoppers, struggled to find a seat in said M & S caf. and got stuck in traffic on the way home.
We've nearly finished his nursery now, I must stick a picture up on here, it's looking lovely. Dan spent the afternoon putting up the curtain rails, this resulted in a lot of shouting and swearing, good job the Pants has non-perfect hearing.
Zack has decided he loves sleeping in his own room. I tried it over a few days and he seems to like his own space and his big cot. I suppose he enjoys looking at the bright walls and pictures in his room and it is better than lying in his carrycot and just staring at grey fabric. Plus I think he was sick of sharing our room, probably couldn't sleep due to his dad's snoring and frequent jumping up in a panic thinking he has lost Zack somewhere underneath the duvet.
Did some movement exercises with his legs and arms today (Zack that is not Dan), he protests a lot about this but in the long run it will benefit him. By protesting I don't mean he screams the place down, just grumbles, typical bloke really.
The exercises involve me turning each leg inward so they are straight. Zack has a tendency to turn his knees out to the side, which makes his feet turn outwards. Once straight I bend them up to his tummy and then straighten them flat to the floor, all this just helps to keep his muscles and joints moving.
He does move his legs about but not lots, I am encouraged that there is movement there. When he was in hospital his legs were always bent and very stiff. Although they are still stiff now, I think they are improving. I also put the Pants on his tummy. Plenty of tummy time is good for him, it gives him chance to strengthen his neck and back muscles. He can lift his head up and turn it to the other side and back again, but it takes a lot of effort and he gets quite frustrated at it all.
Frustration is good, it shows determination and I would rather he have fire in his belly than lie there passively, even if he does get a bit wound up by it all. If I left it and never did anything I know that he would be extremely stiff and his muscle tone would be awful.
Tried to do a bit more with his arms but he isn't keen on this and fights with me, so I just give in....for now!
On Sunday afternoon, seen as he was so wide awake, I thought I would show him the Xmas tree lights. As soon as I switched them on he put his head back and went to sleep, I mean fast asleep. I did say he was good at playing me for a fool. Never mind, I thought to myself, there is always tomorrow young grasshopper and mummy is just as strong willed as you......I think this may be turning into a battle of epic proportions.
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