Showing posts with label Sensory Room. Show all posts
Showing posts with label Sensory Room. Show all posts

Sunday, 6 September 2009

I was so concerned that I even questioned Dan's dose of his anti-epilepsy drug

Zack had the pleasure of his mummy and daddy with him all week. Dan took a few days off work. We hadn't planned to go away anywhere, but we managed to keep the week free of appointments so that we could go out and do lots of nice things together as a family. The weather, on the other hand, had other ideas. Considering it was a really crappy, wet, windy week we managed to have a rather good time. 

We popped over to Chester on Monday for a spot of luncheon and a whizz round the shops. It will also be known as the 'Chilled out Zack Day'. The Pants isn't really one for sitting in his car seat, he can take so much but then if he decides he's had enough, he's had enough, same with being pushed about in his pram. Lately he has started to be, lets say, more accepting of his car seat and pram. I don't know whether he had words with them, or if he has just resigned himself to the fact that he's always going to get plonked in one of them but he seems to not mind so much.

However, on Tuesday, he decided he really loved his pram. Yep, liked being pushed round the shops and was even kind enough to go to sleep for a good hour whilst we had a nice lunch and a bit of a relax. Even when he woke up he just lay there, holding Weedy (no we aren't giving our child narcotics, its a mini mobile that's shaped like a large flower, it reminds me of Little Weed off the Flower Pot men). I was so concerned that I even questioned Dan's dose of his anti-epilepsy drug that he had given him that morning, which led Dan to question if he had in actual fact given him 2.2mls or not.

I don't know what was up with him but he was a little lethargic to say the least. But not to worry an hour after we got him home he was back to his usual self and kicking off because he wanted his food.

Wednesday was Swim Day. Zack got to become duh-ta-daaaaa........AQUA ZACK. We took him for his very first day at the swimming baths and to mark the occasion I had bought him a special little baby wetsuit. It's like a body-warmer, so they don't get too cold when swimming. Dan said he looked like a baby action hero and christened him Aqua Zack, I suppose that would make Dan his side-kick, (suggested names in the comments section please).



Zack, aka Mini Rocky Balboa before his swim session

We went to the Tadpoles session, which is basically the teaching pool with all the play toys thrown in. It wasn't too busy and reasonably clean for a public swimming pool. We think Aqua Zack quite enjoyed it. He had his curious face on, it's hard to describe but it's almost as though he knows that something different is going on but he can't quite work out what it is. He seemed to like the water and being bobbed about, he liked the lights in the pool but couldn't be doing with the toys. Aqua Zack has no time for swim toys he's just there to save the planet!
Fifteen minutes later and the frown appears, followed by pouty lip and then crying. Swim time was over.



Aqua Zaaaaack!! Oh and daddy.


Aqua Zack takes a nap after his swim.


Friday was Sensory Room day. I've mentioned this before, I take Zack along, he watches the bubble lamp and then falls asleep. Well, Friday was no different. We got in, bubble lamp on. Bubble lamp fun to watch.......fibre optics...mmmmmm....quite interesting.....oooooh bubble lamp.......goodnight! So that just left me looking at the bubble lamp and Dan dozing off on the big bean bag with one shoe on and one shoe off. I took the opportunity to do a little of Zack's Scotson therapy whilst he slept, well, best not to waste the hour completely.

I think I need to note down in these entries any small changes that we see in Zack so that I can remind myself of how far he has come along. You see, usually we could measure Zack's abilities by milestones that most babies would meet, well so far we can put down a big fat zero for that as it is going to take him a lot longer than most to meet them. For us we have to look at the finer details, the small stuff that I suppose most parents would miss with their children or even take for granted. For example, most recently we have noticed that he is making more purposeful movements to try and get hold of things in his Little Room. I bought him a little musical rattle with bells on it and the other day he kept hitting it until he very slowly tried to control his left arm and hand in order to touch it and hold it. He didn't do this once he did it a few times. For Zack this is a good step forward.

He is also improving with trying his little bits of food. He is starting to open his mouth a little for the spoon and even sucking some of the food off, messing it around in his mouth and swallowing it. The other day I gave him a little bit of apple puree on my finger and his sucking was really strong. In fact, I was amazed at how good it was, it was continuous and not at all weak like it used to be.

He is taking notice of more sounds now when he has his hearing aids in and when he doesn't have them in he startles to noises a bit more. By far, I think the hearing aids are greatly improving his understanding of the world.

Finally we have managed to get Zack's feeding down to four times a day. He is taking much larger amounts of food so that means we can get him to bed my 9.30pm and he sleeps through until about 6am. No more feeding at midnight. However I say that now, no doubt the dietician will increase his food soon so that may need re-thinking but for now we have a great routine and he is sleeping really well.



Sunday, 14 June 2009

I feel like I am in a very small funhouse for teeny tiny people

I realise in my last post the picture of the Bumbum chair hasn't quite worked, will try and get some new pics of it on here soon. 

I took Zack to use the sensory room in Latchford on Friday, his Auntie Karen came with us. I had booked the room for an hour all to ourselves and it cost us not a penny........I was quite impressed with that considering I was going to spend £40 on Baby Sensory Classes.

So we get to the family centre and oooh and aaah at the nice little building tucked away, then we get taken to the room and oooh and aaaah at the spinning lights. The lady explains how to use the controls for the room.  Meanwhile Zack is checking out the spinning lights and I'm starting to feel nauseous at their endless repetition around the room, I feel like I am in a very small funhouse for teeny tiny people.  The nice family centre lady leaves us to it and we get excited about the nice big comfy leather beanbags and then Auntie Karen gets extra excited about the special little seats for babies. When I spot what she means I too get extra excited, yes, ladies and gents, the sensory room only had the best seat in the world, the Bumbum chair, fantastic. This was followed by lots of screaming about the seat, then Zack got plonked in the seat, followed my more screaming of how cute he looked in the seat. 

By this time Zack really didn't care about the room and went to sleep for the full hour.  So Auntie Karen and I spent the hour gossiping, lying on comfy leather beanbags and relaxing to classical music all whilst messing about with fibre optic lights. It was very relaxing....I recommend that every office in the UK has a sensory room, they're fabulous.

The Pants and I shall be returning for another visit soon, this shall definitely be added onto our list of therapies.

This week coming up is going to be a busy one, we have appointments all week. 

One good thing though, I had a phone call today from a lady whose little boy has a PEG fitted. She is more than happy for us all to come round and visit to see what they look like. I did ask if her little boy wouldn't mind and she enthusiastically explained that he doesn't mind at all, in fact he is often curious to see if other people have them too!!

 Talking of the PEG, Zacks date has come through for his, its on the 15th July. I am very nervous about it, even though we have made the decision I still find it all very uncomfortable. I think for me this is one of the strangest things about being a parent, making decisions for another person. I very much believe that you should be responsible for your own decisions, make your own choices and be in charge of your own destiny (as much as is possible). Now here we are, making a choice for our son to have a tube fitted  into his stomach so that we can feed him. People tell me it's the right thing to do and I know it isn't permanent, but I would give anything for him to not have to go through this. I think I am more terrified of the operation (even though it is only about 10 minutes). Dan isn't worried, he thinks after what he's been through already this will be nothing for him. He also thinks he is a tough little man. I suppose he is but that still doesn't stop me from wanting to scoop him up and protect him from the whole word and lock us away safe from harm. But isn't that how most parents feel?




 It has been a full year, 12 months, 365 days since Zack passed. The 3rd April was a tough day.  The weather was glorious, the sun shined an...