Zack thought we hadn't been to hospital for a while so worked up a real treat of a virus over the past week.
An episode of difficulty in breathing due to a blocked nose, high temp and no sleep for almost two days had me whisking him off to the open access ward for some answers.
We weren't alone for too long a little friend we know well ended in the next bed. Hello if you're reading, hope you feel better. Thought it was slightly dramatic just to have a catch up but it was nice to chat to someone who understands what you're going through.
Two doctors, one x-ray, one urine test and one lot of ibuprofen later we were sent packing with some antibiotics and instructions to drown him in saline nose drops to soften the mucus. Turns out the X ray didn't show definite signs of a chest infection but little spots that may suggest something could turn nasty. Using the theory better to be safe than sorry we took the antibiotics in the hope this may clear up any nast hanging about.
Poor boy, he's just caught one thing after the other, probably our worst winter yet. I think it's all to do with him going to nursery and mixing with lots more children. I am hoping that the more he catches the stronger his immune system gets then again, I know there have been some really horrible bugs out there, I've had them twice and took a while to shift them.
Oh and to top this off Scarly bum has been poorly with her own virus giving her the trots and a lack of appetite. Although it didn't put her off eating half a Freddo bar and ice-cream.
Corner now turned, fingers crossed, seems like both of them are on the mend. I know Zack is feeling a little better as I have had some smiles here and there today and the Scazlet has been stuffing her face. Aaaah back to normal.
Now for the shock......Zack fell off the bed!
Dramatic Pause.
I know. He doesn't move much. How did that happen? I propped him up in a sitting position on our bed with a pillow either side of him to stop him leaning. Scarlett and I went in to her room, next minute I heard, bang, bang, ten second pause and then whoooooooh, whoaaaaah.
No, I thought, it can't be. Whisked up Scarlett went running in to our bedroom to find Zack in tears on the floor. Immediately scooped him up checked for bleeding, checked for bumps, checked for red marks. Nothing. Five minutes of cuddles later he was happy again.
So what happened? He was a foot away from the bed in a sitting position. He wasn't lying down ready to roll. I mean it's bad, but in a way, it's good. It means he can move somewhat. Now when I put him on the couch I have three massive cushions on the floor and give him firm instructions to stay.
I told his Dad what happened, all the while Zack was listening and kept smiling at the phrase "I don't know how he did it".
Little minx, what is he up too?
This isn't my blog, it's Zack's. Zack arrived here seven weeks early, he had no heartbeat and wasn't breathing. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. I hope that for whatever reason you find yourself reading this blog it can go some way to help those in the same situation and some way to remove the cloak that covers parenting a child with disabilities.
Showing posts with label Rolling. Show all posts
Showing posts with label Rolling. Show all posts
Monday, 19 March 2012
Thursday, 11 November 2010
Hey look at me
Took Zack to two play groups this week, the lucky boy.
First one was the monthly group run by the vision specialist team. It was good, they had a bonfire theme but Zack was more interested in a little girl a year younger than him. She is very sweet but gets upset a bit as babies do, well he was fascinated by her crying. Wasn't interested in the fact he had a furry hat placed on his head or was shown a branch to represent the bonfire, nope, he was all about the ladies.
That same lady came along to play group number two run by one of the mummies from play group one (are you all keeping up). Zack had the best day ever at this play group two, he loved it, he was smizing at everyone (smizing = smiling with his mouth and eyes, see Americas Next Top Model for reference). He even rolled over from his back to his sides, the little show off.
At one point I put a little plastic frame over him that had toys dangling down. Toys, I don't need toys. Watch this, and he grabbed hold of the side and tried to pull himself up, all the while looking at his new little girl pal. If he could speak I'm sure he would say, hey look at me, look at meeee, look what I can do (in a Stewie Griffen voice, in my head that's what Zack sounds like).
He was even a good boy in his car seat. What a delight.
Feeding is continuing to go well and I have now stopped giving him that horrid Infatrini Energy and no sick. Nope no sicky. It's fantastic. We still get a teeny bit here and there but over all it's a great improvement. We are now on three meals a day, two drinks of whole milk and a pump feed of just water at night. Amazing. He is even going to bed at around 8pm and sleeping through until 6.30am. Although I can't help but think that as I type this next week I will be saying oh God, what's with the waking in the night, or oh no the sickness is back. But for now, the Pants is just brilliant and amazing.
First one was the monthly group run by the vision specialist team. It was good, they had a bonfire theme but Zack was more interested in a little girl a year younger than him. She is very sweet but gets upset a bit as babies do, well he was fascinated by her crying. Wasn't interested in the fact he had a furry hat placed on his head or was shown a branch to represent the bonfire, nope, he was all about the ladies.
That same lady came along to play group number two run by one of the mummies from play group one (are you all keeping up). Zack had the best day ever at this play group two, he loved it, he was smizing at everyone (smizing = smiling with his mouth and eyes, see Americas Next Top Model for reference). He even rolled over from his back to his sides, the little show off.
At one point I put a little plastic frame over him that had toys dangling down. Toys, I don't need toys. Watch this, and he grabbed hold of the side and tried to pull himself up, all the while looking at his new little girl pal. If he could speak I'm sure he would say, hey look at me, look at meeee, look what I can do (in a Stewie Griffen voice, in my head that's what Zack sounds like).
He was even a good boy in his car seat. What a delight.
Feeding is continuing to go well and I have now stopped giving him that horrid Infatrini Energy and no sick. Nope no sicky. It's fantastic. We still get a teeny bit here and there but over all it's a great improvement. We are now on three meals a day, two drinks of whole milk and a pump feed of just water at night. Amazing. He is even going to bed at around 8pm and sleeping through until 6.30am. Although I can't help but think that as I type this next week I will be saying oh God, what's with the waking in the night, or oh no the sickness is back. But for now, the Pants is just brilliant and amazing.
Wednesday, 3 November 2010
Jealous me. Not much.
Right the thing is I put in all the hard graft with Zack. I do all his therapy, his physio, play games with him, take him to playgroups, take him for walks, show him things, read to him etc etc. I don't mind doing all of this, in fact I love it and I am very lucky to not have to go to work so that I can spend my time helping him.
But, why, when his dad is out working hard to look after the pennies does he get rewarded with the good stuff. Yep. The other evening Zack decided that now would be a good time to show how he can roll from his back to his side.
I have been trying to get him to roll from his back to side for ages. I didn't believe that he could do it. So Dan showed me or rather showed off at how he got Zack to roll. And the little bugger did it again, both sides. It's was brilliant and a huge step forward.
Oh and before that Zack was on his mat and Dan was chatting to him and Zack was giving him lots of smiles when he did an agoooo noise back. Right. Now you decide you'd like to chat with your daddy as well. Hmph.
Jealous me. Not much.
(Very proud of Zack though. The sod hasn't done any rolling for me since the other night may be he's saving sitting, walking and bloody talking for his favourite person, Daddy!)
But, why, when his dad is out working hard to look after the pennies does he get rewarded with the good stuff. Yep. The other evening Zack decided that now would be a good time to show how he can roll from his back to his side.
I have been trying to get him to roll from his back to side for ages. I didn't believe that he could do it. So Dan showed me or rather showed off at how he got Zack to roll. And the little bugger did it again, both sides. It's was brilliant and a huge step forward.
Oh and before that Zack was on his mat and Dan was chatting to him and Zack was giving him lots of smiles when he did an agoooo noise back. Right. Now you decide you'd like to chat with your daddy as well. Hmph.
Jealous me. Not much.
(Very proud of Zack though. The sod hasn't done any rolling for me since the other night may be he's saving sitting, walking and bloody talking for his favourite person, Daddy!)
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