We have splashed out on the rolls royce of blenders

Zack's new diet of blended food is going extremely well, he is putting on weight and growing. We are now completely off the formula milk he was given and his vomiting/refulx has much improved. 


With all these positive signs we have splashed out on the rolls royce of blenders, the Vitamix. Yes it is very expensive and ordinarily I wouldn't even contemplate paying so much money for a household item. However, having read the reviews of people who have bought one I thought it was well worth the investment given that Zack is now on a total blended diet. 


And oh my it is amazing. Here is a link to a video if you are that interested in it. 


Vitamix Video



Normally I would have blended Zack's food up then sieved it to ensure no lumps but not with the Vitamix, a.k.a. Boris. The other day we did a jacket potato complete with skin and it blended it up in less than 10 seconds to a smooth consistency. Wow. 


Now Zack can have anything with no worry of lumps blocking his tube. So glad we got Boris.




Zack went to his second Christmas party. His third one was cancelled due to the snow but is to be rearranged. 


Party number two was at his vision play-group. The Pants took his daddy along. Well he kept looking at him, a little confused as to why he was there, but showed him what he got up to at his play-group. This included making a christmas card, winning the pass the parcel, meeting Father Christmas again and getting another present. The lucky boy.


Talking of being a lucky boy I noticed that most of the presents under the tree are for his lordship. I mean how did that happen, I was only going to get him a few and now he has a lot. Still he's been a good boy and deserves to be spoilt now and again. 


We are all looking forward to Christmas and Zack his being his charming self for his daddy. Who came home having finished work last week and was astounded at how happy and good Zack was being in his chair. He enquired as to whether he was like this for me every day. Pretty much I said. See for yourselves.

Something I stole

Here is something I have stolen or rather with their permission borrowed to share. This was written by a lovely lady who has a gorgeous little boy with disabilities. I think it explains perfectly how easily we take for granted the ordinary things in life and how for some a smile is one of the most complex things to perfect.

A CP Smile.

                                                                                                                                                                                                                                       The complexities that go in to a simple movement are unfathomable!

Something as simple as a smile, to you or I is no great undertaking.

To a child with a damaged brain, it is as complicated as reaching distant galaxies.

You have to be able to look, and you have to be able to see....and the two don’t always come together.

Then you have to register what you have seen, and send a message to the part of your brain that can then respond.

That message is like a Chinese whisper, and often gets lost in translation.

If, and this is a huge if. If that message gets back, you then need the control, desire and ability to reciprocate.

But the muscles have a mind of their own, and like a petulant child, refuse to co-operate.

Of course you must also understand the intention of the smile, or how do you know it is something you might wish to reciprocate.

And then it happens....you smile....and the journey is forgotten....only the destination is worth remembering.

Only for some, the journey is long, seemingly impossible. There are twists and turns and unexpected diversions.

Some of the bridges are down, and the only way through is to rebuild from the ground up.

So when you finally reach your destination, and you have got there with more than your share of scrapes and near misses....you will understand the celebrations at your arrival, for it has been long awaited and the stuff of dreams for many a year.

Yes SANTAAAAAAAAAAA complete with presents.

Tis the season for lots of parties, troll-la-la-la-lahhhhh la la laa laaaaah laaaaaaaaaaaaaah!!


Zack went to the first of three Xmas parties today. Yep, three. He's not even two years old and his social calendar can be likened to an A-list celebrity, well more like Z list but it's good to have a goal.


This one was at a rather nice hotel in Warrington and was organised by Families United. What can I say. It was brilliant. Lovely venue, gorgeous food for both adults and children. Children's entertainer and Santa.


Yes SANTAAAAAAAAAAA complete with presents. Oh and lets not forget the Mayor and Mrs Mayor. 


Zack had his new party outfit on and was looking very dapper. He started off the afternoon with a power nap whilst getting a PEG feed. Who needs to be awake to eat. After the twenty minute power nap, he woke up and looked in shock. I think he forgot that he was out and not at home. But it's okay, just change my bum and I will be ready to party.


He sang, or rather shook his musical instrument to some Christmas Carols. He met Santa and the Mayor and got a present, he even gave Santa a festive grin. He watched a puppet show, got bored with puppet show and decided to check out the other children. 


Finally he was kidnapped by another parent who wanted to meet him and have a cuddle. But what a brilliant afternoon. Oh well one down, two to go. Here's some pictures.

The Pants meets the Santa

He goes in for the present

OOOOOh what have we got dad?

Ho!Ho!Ho!

What's going on?

Oh hi dad, I got me some raffle tickets