The boy with five names

This isn't my blog, it's Zack's. Zack arrived here seven weeks early, he had no heartbeat and wasn't breathing. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. I hope that for whatever reason you find yourself reading this blog it can go some way to help those in the same situation and some way to remove the cloak that covers parenting a child with disabilities.

Tuesday, 13 May 2014

Mucas, sick and poo

I don't know what's powering me at the moment. Zack continues to wake up every night from about 1am. Either full of snot, or having a bout of his seizures. Either way it's all getting very boring and tiresome, so very, very tiresome.

Last night he was furious, he woke up coughing and snotting and then seizuring, I think in the end he went to sleep, I know I did, I hope he did. He is currently fast asleep on my bed, he has been for over an hour and half. At least he is getting some rest, I know I'll pay for it later when he refuses to go to bed.

Today was a better day than yesterday. His bouts of "seizures" were less and the length of period in between longer.

Apparently this morning there was an incident involving snot, mucas, sick and poo. I didn't have to deal with that, thank God. All I hear Dan saying was I didn't know someone so small could produce that amount of snot, it's amazing what the body is capable of distributing into your personal space.