A while ago Zack, Dan and I had the pleasure of meeting a lovely little girl called Rania and her very wonderful Aunt Jo at Spaced in Preston. Like Zack, Rania has cerebral palsy and epilepsy.
We only met them for a short while but through the beauty of social networking and the Special Kids in the UK forum I have kept up-to-date with her many, many achievements. I am always amazed at how well she is doing, how she goes to a mainstream school, how despite her difficulties she achieves so much.
I know that all children with disabilities are not the same. Some make astounding achievements in their development, some do not. But Rania gives me hope that perhaps one day Zack will be able to do the same.
Rania was born in Algeria at the age of two she came over to the UK to stay with her Aunt and Uncle. Now aged five she has a stable family environment. In her eyes, aunty and uncle are mummy and daddy and her cousin is her sister.
The Home Office wants to deport Rania back to Algeria. If this happens she will not receive the correct medical care which could be fatal.
Please take a moment to read the article in the Bolton Evening News link below as this explains her case in more detail.
Bolton Evening News
Her family are trying to stop the deportation from happening and if you want to help there are a few things you can do.
There is an online petition which takes a few seconds to complete and can be found here.
Stop the deportation of Rania
And a Facebook page which has further information and other supporters this can be found on the following link:
Rania Must Stay
I hope the next time I blog about Rania it will be with good news and perhaps even a second meeting at Spaced.
This isn't my blog, it's Zack's. Zack arrived here seven weeks early, he had no heartbeat and wasn't breathing. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. I hope that for whatever reason you find yourself reading this blog it can go some way to help those in the same situation and some way to remove the cloak that covers parenting a child with disabilities.
Thursday, 19 May 2011
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